whether it be a son or a daughter, a niece or a nephew or anyones little one please take a minute to read this
Last week I went back to what I consider home and spent a day with my mother-in-law. She was telling me about a fund raiser for a baby boy in her ward. He was born with Spinal Muscular Atrophy, SMA. He is only a month younger than my baby, so it hits where it hurts.
If you have any extra prayers to give, please go here. My heart breaks for this little family. They need so much support.
Every day is a struggle for him. Breathing, is hard because his little chest is atrophying, and he is fed by a feeding tube. His parents say he is still only living because of the miracle of fasting and prayer.
What really took me by surprise was when my mother-in-law was telling me there are quite a few people who judge these parents for keeping their baby alive. I just can't imagine this, because if my baby smiled and cooed at me and had a spark in his eyes like this little Karson does I wouldn't think I could let him go either. Doesn't a spark mean you are still willing to fight.
There is going to be a benefit concert put on by Brenn Hill. (he's country) and a live auction. All the proceeds will be going to this family to help with the expensive medical bills they have incurred. If any of you have anything or anyone who has anything to put into this it would help greatly.
These parents are so great, they've never complained on their blog and they just appreciate every moment they have. They are so courageous!
I haven't been able to get this baby out of my mind, so I hope this helps me. I'll post more about the concert when I know more.
5 comments:
That blog broke my heart. He looks like such a sweet baby. How can anyone say that his parents should let him die?
Isnt this so sad? I have a photographer friend that is good friends with the Riggs and she is helping with the benefit concert which I think is AWESOME!!! Definitely prayers there way.
Prayers coming their way. What a sweet little boy.
I am so sorry that those parents are having to deal with that on top of their babies health issues. Those people that are judging this little family should watch this youtube video...
http://www.youtube.com/watch?v=th6Njr-qkq0
Each and every day with a child is a miracle. When they are only here for a short time it just makes those moments even more precious.
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